Displaying episodes 1 - 3 of 3 in total
Parenting a Rare Disease Child with Rare Mamas Founder Nikki McIntosh
Nikki McIntosh, the founder of Rare Mamas, believes there is a brave fighter inside every rare-disease mother. By sharing her learnings, tips, and resources, Nikki wan...
Radical Optimism in Rare Disease with Dr. Kathryn Swoboda
In this episode we speak with Dr. Kathryn Swoboda, a neurologist at Massachusett's General Hospital specializing in Spinal Muscular Atrophy is in conversation with co-...
Introducing The Genetics of Hope Podcast
From True Spectrum Media this is the Genetics of Hope podcast, a candid conversation series with the doctors, patients, researchers, families and activists who make up...