Candid conversations with leading doctors, patients, researchers, and families in rare disease communities.
Parenting a Rare Disease Child with Rare Mamas Founder Nikki McIntosh
Nikki McIntosh, the founder of Rare Mamas, believes there is a brave fighter inside every rare-disease mother. By sharing her learnings, tips, and resources, Nikki wan...
Radical Optimism in Rare Disease with Dr. Kathryn Swoboda
In this episode we speak with Dr. Kathryn Swoboda, a neurologist at Massachusett's General Hospital specializing in Spinal Muscular Atrophy is in conversation with co-...